Mollaret's Meningitis Association For a world free of Mollaret's Meningitis

Mollaret's Meningitis Information

"Mollaret meningitis is a rare type of viral meningitis that is characterized by repeated episodes of fever, stiff neck (meningismus), muscle aches, and severe headaches separated by weeks or months of no symptoms. About half of affected individuals may also experience long-term abnormalities of the nervous system that come and go, such as seizures, double vision, abnormal reflexes, some paralysis of a cranial nerve(paresis), hallucinations, or coma. Mollaret meningitis is poorly understood and the exact cause remains unknown. However, recent data suggests that herpes simplex virus (HSV-2 and, less frequently, HSV-1) may cause some, if not most cases. Other causes may include trauma and viral infections other than herpes simplex. There is no specific treatment, so management involves supportive measures such as rest, fluids, and medicine to relieve the fever or headache." - Genetic and Rare Diseases Information Center


Through research between sufferers, we have determined that there are as many of us with chronic, everyday, symptoms as those with truly recurrent symptoms. We have found that Lysine is effective for helping a lot of people keep the virus from replicating. Another term used is Recurrent Benign Lymphocytic Meningitis.


We have also noticed a possible link to Functional Neurological Disorder (FND), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and other chronic illnesses, but this is only anecdotal at this time. Dr. Jon Stone, the leading expert on FND stated, "Any neurological disease, including Mollaret's is a powerful risk factor for FND - I have seen FND co-existent with all types of neurological disease.".  If you have medically unexplained symptoms along with Mollaret's, you can get more information about FND here and ME/CFS here.