Mollaret's Meningitis Association For a world free of Mollaret's Meningitis

By: Michael | September 26, 2017

Dustin Pepper, our Executive Director, recently had the opportunity to write a post for our partner, the Confederation of Meningitis Organisations (CoMO), about the importance of partnerships.  You can read the post here

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By: Michael | September 22, 2017

By Mary

I was diagnosed about 3 years ago. It started on a Saturday morning at the end of May with a headache. We had family visiting for the weekend and had gone out to Mexican food. At first I thought it was the sugar in the Margaritas. Took a couple of Excedrin but it did not ever subside. In fact over the next 24 hours it was starting to get really bad. I finally took a Vicodin after my guests left on Sunday night. I woke up around 3:00 in the morning vomiting and with the most excruciating headache I have ever experienced. I was curled up in the fetal position for the next three days. Once the vomiting subsided I felt a little better but not much. I thought I had a really bad flu. It wasn't until about a week and a half later that my si...

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By: Michael | September 18, 2017

Medical Advisory Board member
Dr. Alon Hait

Dr. Alon Hait, one of our Medical Advisory Board members, will be presenting his research on Mollaret's Meningitis to a group at Oxford University later this month. His talk is called, “Mollaret’s meningitis – the case of an underused diagnosis and the link to primary immunodeficiencies”.

You can get information about the event here:

He has agreed to provide pictures and an update on how the event went. We will share that with you once he is able to provide the information to us.

By: Michael | September 15, 2017

By Julie

Mollaret meningitis has controlled my life. I feel so badly for everyone on this website who has this horrible disease. I have looked and researched for years to find answers. Any answers. My health has not been good. Since being diagnosed first in the year 2000, I have had it three times. Each time was more severe than the last. 

I did go to Mayo Clinic in Rochester MN to see if any specialists there could tell me more. I went to Rush University in Chicago. They did not have answers. I have been to many infectious disease doctors, seen so many specialists, blood test, lumbar punctures, brain, spine, neck MRI's. I am left just thinking there is no cure. There is no help, and this disease is poorly researched and not fully unders...

By: Michael | September 08, 2017

By William | Denver, CO

About 10 years ago I started having problems with headaches, nausea, digestive problems, and a lot of back pain but not usually all at once. 

It wasn't until 2015 that I had a major episode of Mollaret’s, and since then I've had multiple outbreaks.  Each one is so brutally painful that they're crippling, I can barely move, and they make it to where I can't think.  It also makes it to where I can't do anything.  I can't open my eyes to look because the light hurts too bad.  I can't move, rollover, sit, stand, anything for an extended period of time.  Focusing on anything gets rather difficult, especially during outbreaks. 

I was not definitively diagnosed until 2017 by an infect...

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