Mollaret's Meningitis Association For a world free of Mollaret's Meningitis

By: Michael | September 26, 2017

Dustin Pepper, our Executive Director, recently had the opportunity to write a post for our partner, the Confederation of Meningitis Organisations (CoMO), about the importance of partnerships.  You can read the post here

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By: Michael | September 22, 2017

By Mary


I was diagnosed about 3 years ago. It started on a Saturday morning at the end of May with a headache. We had family visiting for the weekend and had gone out to Mexican food. At first I thought it was the sugar in the Margaritas. Took a couple of Excedrin but it did not ever subside. In fact over the next 24 hours it was starting to get really bad. I finally took a Vicodin after my guests left on Sunday night. I woke up around 3:00 in the morning vomiting and with the most excruciating headache I have ever experienced. I was curled up in the fetal position for the next three days. Once the vomiting subsided I felt a little better but not much. I thought I had a really bad flu. It wasn't until about a week and a half later that my si...

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By: Michael | September 18, 2017

Medical Advisory Board member
Dr. Alon Hait

Dr. Alon Hait, one of our Medical Advisory Board members, will be presenting his research on Mollaret's Meningitis to a group at Oxford University later this month. His talk is called, “Mollaret’s meningitis – the case of an underused diagnosis and the link to primary immunodeficiencies”.

You can get information about the event here: http://edge-itn.eu/index.php/edge-events

He has agreed to provide pictures and an update on how the event went. We will share that with you once he is able to provide the information to us.

By: Michael | September 15, 2017

By Julie


Mollaret meningitis has controlled my life. I feel so badly for everyone on this website who has this horrible disease. I have looked and researched for years to find answers. Any answers. My health has not been good. Since being diagnosed first in the year 2000, I have had it three times. Each time was more severe than the last. 


I did go to Mayo Clinic in Rochester MN to see if any specialists there could tell me more. I went to Rush University in Chicago. They did not have answers. I have been to many infectious disease doctors, seen so many specialists, blood test, lumbar punctures, brain, spine, neck MRI's. I am left just thinking there is no cure. There is no help, and this disease is poorly researched and not fully unders...

By: Michael | September 08, 2017

By William | Denver, CO


About 10 years ago I started having problems with headaches, nausea, digestive problems, and a lot of back pain but not usually all at once. 


It wasn't until 2015 that I had a major episode of Mollaret’s, and since then I've had multiple outbreaks.  Each one is so brutally painful that they're crippling, I can barely move, and they make it to where I can't think.  It also makes it to where I can't do anything.  I can't open my eyes to look because the light hurts too bad.  I can't move, rollover, sit, stand, anything for an extended period of time.  Focusing on anything gets rather difficult, especially during outbreaks. 

I was not definitively diagnosed until 2017 by an infect...

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